Living with HER2-mutated NSCLC

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When Elaine Lynch was diagnosed with HER2-mutated NSCLC, she had no idea that she had a particular type and rare form of lung cancer. Elaine’s knowledge evolved as her own patient journey progressed, and she has been able to use this insight to talk to us in this short video about;

- What it means to her to live with a rare alteration of NSCLC
- What Elaine would like other patients to know
- What support she has had access to and how it has helped


Meet Elaine…

Elaine Lynch was diagnosed with Stage 4 metastatic HER2 exon 20 mutated NSCLC.

The initial diagnosis came within 24 hours of her first and only symptom and was a massive shock as Elaine has never smoked.  

Elaine lives in the UK and is a retired school business manager.

Following her diagnosis, Elaine set out to find others with the same diagnosis in the hope that they could share their experiences together, because Elaine felt having a rare alteration is often a lonely place to be.

A small group of just three with the same diagnosis was formed in the UK.  

All three of those Elaine was able to connect with were women of a similar age, all non-smokers, all seemingly healthy and all diagnosed unexpectedly with Stage 4 lung cancer. Elaine felt their journeys were eerily similar.

Elaine believes that positivity is a choice and is using that as a focus throughout her cancer journey. Elaine explains how she concentrates on finding the hope in the hopelessness that usually comes with a lung cancer diagnosis.

Elaine is keen to point out that chemotherapy, targeted therapy and radiation have enabled her to continue to thrive, and although science has done an excellent job of keeping her cancer at bay, Elaine strongly believes that the mental battle is just as important.  Elaine says, “We all have bad days, I just try not to let them ruin the good days, I believe there is still a lot to look forward to”. 

Elaine is a member of a number of social media platforms providing help and advice for lung cancer patients in the UK.  





The views expressed within this video are the personal opinions of the interviewee.

This video is supported by an Independent Education Grant from Boehringer Ingelheim



This video is developed by cor2ed.com

Published on May 2025



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Category
Oncology
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