The soul of oncology: Centering patient stories amid funding saga

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Last week’s issue of The Cancer Letter included an obituary that the entire staff at The Cancer Letter had been dreading for years: Abdallah Abou Zahr, an oncologist at Roger Maris Cancer Center in Fargo, ND, died Jan. 23 of a liposarcoma after a five-year battle with the disease.

Abou Zahr’s story had become personal for The Cancer Letter. In February 2024, an intimate story of how cancer hijacked his family’s future—and of how his colleagues and community rallied around him—became one of the magazine’s most read articles. His family’s story highlights the heartbreaking reality that even those who work in oncology are not immune to the devastating personal and financial impacts of cancer.

On this week’s episode of The Cancer Letter Podcast, Paul Goldberg, editor and publisher of The Cancer Letter, and Jacquelyn Cobb, associate editor, reflect on Abou Zahr’s experience with cancer—as an oncologist, a caregiver, and, ultimately, a patient with terminal disease.

Abou Zahr’s obituary was published last week alongside a story about the fate of the fiscal year 2026 funding bill, which was still uncertain at the time. As of Feb. 3, the FY26 funding bill has been passed by Congress and signed by President Trump. Paul and Jacquelyn talk about how important it is for The Cancer Letter, even as a trade publication, to consistently highlight real patients and their stories.

“When we do those stories, they're the most read stories of the year or years,” Paul said. “That is one thing they all have in common.”

“They’re resonant; right?” Jacquelyn said. “I think it is important that we kind of circle back to that every once in a while, even if that isn't necessarily our coverage area technically. We're not necessarily a general publication, but I think we have to keep circling back to that and returning to that because that is the whole point.”

“It's for the soul,” Paul said.

Stories mentioned in this podcast include:
Abdallah Abou Zahr, an oncologist whose cancer story resonated widely, dies of liposarcoma at 42
An oncologist navigates terminal sarcoma, insurmountable debt, and “a legacy of grief”
FY26 funding package blocked in Senate after ICE shooting of Alex Pretti
The Directors: Gary Schwartz and Ramon Parsons on the best of times (for science), the worst of times (for funding)
Les Biller: Supportive cancer care is the smart investment our leaders in Washington can’t afford to ignore

A transcript of this podcast is available: https://cancerletter.com/podcastc/20260204-abdallah/
Categoria
Oncology
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